Support for neonatal families

25 September 2023

Support for neonatal families

Being on the neonatal unit with your baby can be an overwhelming experience and a rollercoaster of emotions from joy and happiness to worry and exhaustion. If you’re a parent who is currently experiencing the neonatal unit or have in the past, know that there are lots of organisations you can reach out to. In this blog, we have listed some of the national charities available to you:

Bliss Charity
Bliss exists to give every baby born premature or sick in the UK the best chance of survival and quality of life. Bliss aim to receive the best care by supporting families, campaigning for change, supporting professionals, and enabling life-changing research.

The Smallest Things

The Smallest Things is dedicated to creating a better world for premature babies and their families after neonatal care. The Smallest Things aim to raise awareness of premature birth and the needs of families following intensive care. They also aim to promote high-quality care for parents affected by postnatal depression, anxiety and symptoms of post-traumatic stress disorder associated with premature birth.

Peeps HIE Charity
Peeps is the only UK charity dedicated to supporting those affected by H.I.E. HIE stands for hypoxic-ischaemic encephalopathy. It is a lack of oxygen to the brain that can cause injury. Peeps was set up in 2018 by Sarah & Steve.

Sands exists to reduce the number of babies dying and to support anyone affected by the death of a baby, before, during or shortly after birth, whenever this happened and for as long as they need support.

The Rainbow Trust
The Rainbow Trust Children’s Charity supports families who have a child aged 0-18 years with a life-threatening or terminal illness.

There are also many charities that support families in their local community. Be sure to look up what support groups and help is available near you.