Supporting Epilepsy Diagnoses this Purple Day

     

March 26th marks Purple Day; a global initiative dedicated to raising awareness about epilepsy. Founded in 2008 by 8-year-old Cassidy Megan, the day aims to encourage people to talk about epilepsy and dispel the myths, stigma and fears surrounding the condition. Named after the internationally recognised flower of epilepsy, lavender, Purple Day encourages thousands of people to wear purple, host events, and spread information about epilepsy.

In the UK, 626,000 people live with epilepsy, with 79 new diagnoses every day. Timely access to a diagnosis and treatment is essential as any delays can lead to serious complications. With the growing integration of digital technology, neurologists now use smartphones to access patient videos.

Developed to support rapid precision diagnostics and decision-making, vCreate utilises asynchronous video technology to aid clinicians in accessing patient videos and metadata remotely. Patients and caregivers can securely share videos of potential seizures and symptoms via the platform for review, expediting diagnostic processes and providing reassurance a lot faster.

vCreate has garnered positive feedback from clinicians across the UK. Some of the feedback includes:

“vCreate has transformed how we use carer-recorded video in our service. We are diagnosing more rapidly and preventing misdiagnosis. Families feel more in control and better connected to the service.” - Professor Sameer Zuberi, Consultant Paediatric Neurologist, Glasgow’s Royal Hospital for Children.

“vCreate has had a particular impact on our epilepsy surgery programme. Children being evaluated for epilepsy surgery, for whom we can obtain good home videos of their seizures, can sometimes avoid prolonged admissions to hospital to capture seizures on EEG. This speeds up the process of determining whether surgery is an option, a treatment which can potentially cure their epilepsy, and means that prolonged inpatient investigations are targeted at those children for whom there is no alternative.” - Dr Robert Robinson, Consultant Paediatric Neurologist, Great Ormond Street Hospital.

“vCreate allows patients to communicate with our team in real-time, so we can provide reassurance of non-epileptic events and put their minds at ease a lot faster than traditional methods.”- Dr Eleanor Saturno, Consultant Neurologist, NHS Fife.

If you are interested in exploring how vCreate could support your epilepsy teams and patients, please email us to request a demo.